Posts

The Toilet, My Multiple Sclerosis Sanctuary

  The toilet, or the rest room, a confined space that I learned to appreciate and literally escape to, thanks to MS. Thorough the years dealing with MS, I had the possibility to experience and maybe enjoy several aspects to this commodity usage and duration. That’s how the toilet became my sanctuary to deal with my bowel issues and other MS related problems.   “Hold it, hold it”, I used to tell myself…   “Hold it, hold it”, I used to tell myself and diligently ask from my body, to keep my bowel under control for a couple of seconds, while on my way to toilet, fearing a public leakage scene, especially at work. As my body kept playing games with me, I now have to wait for my bowel to decide to open its valves, or maybe not yet, 15 minutes already and it just feels it’s so close yet so far to be delivered. A time for meditation and self reflection you might say. It is not! The toilet became my special cry room, where I could silently scream about my distress and pain. ...

MS Mental Health, I Just Wanna Talk...
It’s known that pirates search for buried treasures, archaeology dig for lost civilizations, and investigators for malicious criminals. I for once went into a pursuit to find a …

An MSer Typical Summer Vacations
Summer vacations, the long-awaited short period of time, that we desperately need after months of hard work, stressful situations and daily challenges. Despite the Covid-19 rest…

Memories, The Before And After MS Diagnosis
Memories, those moments we cherish often and deliberately invoke whenever we need either some comfort or in the worst cases, some self petty. During the last years, My memories …

My Daily Life with MS, Plans And Schedules
I have never had any specific planning routine for each of my daily life tasks, but thanks to MS, I was able to grow the need to strategically plan any “expedition” outside my c…

How To Set Life Goals Living With MS?
Many MSers will painfully admit they had amazing and empowering dreams or life goals to reach prior to MS diagnosis. What is even painful, is giving up on those life goals and p…

The MS Symptoms & Russian Roulette Risk
You can ask any MSer about their MS symptoms, and you can be almost certain to hear several descriptions. Even though our symptoms perception might differ, we do face the same s…